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Spring 2001
Volume 00, Number 2
Newsletter
on Philosophy and Medicine
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A
Modest Proposal: Redux
Mark Oshinskie, J.D.
New Brunswick, NJ
Scientists and journalists recently heralded the mapping of the
human genome as a great advance for humanity. While any gene-based
therapies are reportedly decades away, the use of genetic testing
to screen defective fetuses already occurs and will sharply increase
as genomic interpretation advances. I wonder if this is such a noble
enterprise.
Years ago I worked in a bottling factory. Several white-coated quality
control women wordlessly roamed the noisy production floor. They
took bottles from the end of the line and ran a series of inscrutable
tests to determine which bottles to put out to the public and which
to reject. If defects were suspected, they'd mark the lot with a
big X. The foremen would angrily instruct me to take the rejected
bottles to the Dumpster, where I would smash them with a sledge
hammer so they could not be salvaged.
Although, as Neil Holtzman observed, predictive interpretations
of genetic profiles are often wrong-and will inevitably continue
to be. Yet, genetic testing will be used to evaluate unborn people
like commodities.
Despite all of the uncertainties attendant to genetic interpretation,
this is a society that plays the percentage. Even a study of unknown
methodology about dietary fat mentioned on the radio while we butter
our toast causes people to feed the toast to the birds. Given this
proclivity, probabilistic suspicions about genetic influences on
human development will prompt some in our freedom-oriented culture
to terminate fetuses who have some slight genetic risk of disability.
In a real life interpretation of Jonathan Swift's "Modest Proposal,"
parents can breed perceived defects out of the human race by purging
the defective.
Of course, many view a society free of people with disabilities
or other imperfections as desirable. But what is the existential
impact on all individuals when-as eugenic abortion takes firmer
hold-disability becomes ever more stigmatized, ever more broadly
defined and, ultimately, ever more of an abstraction? Will the joy
of everyone's existence diminish when we believe we are not meant
to be here in some larger, metaphysical way but, instead, here simply
because we met a quality-control inspector's standards? In this
kind of world, what child will be able to believe in a parent's
unconditional love?
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